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Infusion Game Strong

“Be happy in the moment, that’s enough.” -Mother Theresa

With patience and a solid sense of humor, Abraham can bring happiness and ease to some serious situations. Today, our young warrior was exceptionally prepared, present, and positive. Even at the onset of a long, daunting medical task, those smiling, honest eyes let everyone in the room know he was going to be just fine.

Back home, Big Brother Tom shined up the kitchen, washed the windows, and set out these little lovelies (snips of Saturday’s bouquet) to make us feel cheerful, welcome, and calm.

Since May, Abraham knew the stim tests were happening after the 4th of July. Even though he’s been infused plenty, it’s never easy; plus, hormones are new territory.

We were blessed with a smooth day: highly-skilled double IV access to start, a LOT of necessary but swift blood draws, 7/8 of a game of checkers, laughter during two movies (Zootopia and Minions), one ice pack, plentiful ice chips, a puke bucket rapidly taken out that was not utilized, quick traffic (big shoutout to chauffeur Aunt Margaret), and warm sunshine .

Thank you for carrying us in your thoughts today -it lifted us.

Peace and love…

Protection Forever

“It is the nature of grace always to fill spaces that have been empty.”

-Johann Wolfgang von Goethe

I miss my mother every single day. At scary times when I try to conjure a sense of security around me as “Brave Mom,” I miss my mother extra.

Those who follow our story know how Abraham can sometimes make tough days seem like holidays. Today was one of those days.

Surgery was scheduled for 8:00 a.m., and we’d come up to Chicago a day early to enjoy the city.

Although the hotel was a comforting luxury, we both had a rough night sleeping so near Navy Pier. Fireworks were a thrilling bedtime story, but the continued pulse of hot rods, motorcycles, and 3:00 a.m. rogue fireworks (with a quick follow up of sirens that chased away said rogues) made our 6:15 hospital arrival a bit robotic. Luckily, Aunt Marg is a great driver and RoboMom is incredibly efficient; consequently, we arrived early.

We definitely weren’t robots for long. Every single worker we met from the minute we arrived at Lurie Children’s Hospital lifted us up today: smiling receptionists at the ready; security guards comfortingly on duty; an anesthesiologist who kinda looked like me and definitely shared my sense of humor; a successful on-time surgery; and a smooth recovery without complication.

I snapped a quick pre-surgery shot just as he was ready to roll…

I also shared the following update on Facebook as we waited for the anesthesia to wear off:

“Got it done! Apparently, Abraham was cracking jokes with the surgeon on the way in, and although he’s still a bit anesthesia-loopy, he has the sweet nurse smiling and feeding him a red popsicle. Plus, the hospital has new, improved, Looney Toons band-aids:)… Love and big gratitude, all 💛✨”

As soon as we were ready to leave, two candy-striper-age volunteers found a wheelchair quickly (no small feat) and easily escorted us downstairs -engaging Abraham with a true, sweet tale of his beloved neurosurgeon, Dr. DiPatri having been on “Cake Boss”. We can totally picture it!

Add in our 70-mile transit time plus a huge Rosatti’s carry-out order, and we were still safely home by noon!

So, everyone who sent us the happy feels today, we got them. Your energy wrapped us in a protective, loving grace and carried us through our day.

“Love as powerful as your mother’s for you leaves it’s own mark. To have been loved so deeply, even though the person who loved us is gone, will give us some protection forever.”

J.K. Rowling

I am forever grateful.

Peace and love…